Seminars in Nephrology
Volume 26, Issue 2 , Pages 114-117, March 2006

Quality of Life for Children With Chronic Kidney Disease

Department of Pediatrics, Baylor of Medicine and Renal Dialysis Unit, Texas Children’s Hospital, Houston, TX; Division of Pediatric Nephrology, Pediatric Voiding Dysfunction Clinic, Johns Hopkins University School of Medicine, Baltimore, MD; University of New Mexico Health Sciences Center, Department of Pediatrics, Albuquerque, NM; Department of Pediatrics and Epidemiology, Welch Center for Prevention, Epidemiology and Clinical Research, Johns Hopkins Medical Institutions, Baltimore, MD.

Medical care advancements for children with chronic kidney disease (CKD) receiving hemodialysis, peritoneal dialysis, or with a renal transplant have resulted in relatively improved long-term patient survival compared with adult patients with CKD. Optimal care for the pediatric patient with CKD requires attention not only to medical management, but also the psychosocial and developmental factors that either will ensure or prevent a pediatric patient’s successful transition into adulthood. We review the range of issues that impact pediatric CKD patients’ health-related quality of life (HRQOL), the history of pediatric CKD patients’ HRQOL investigation, and the instruments currently available to assess HRQOL.

Keywords:  health-related quality of life , children , chronic kidney disease

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PII: S0270-9295(05)00185-3

doi:10.1016/j.semnephrol.2005.09.004

Seminars in Nephrology
Volume 26, Issue 2 , Pages 114-117, March 2006